A poem written by my 18 year old (Pomona-bound!) daughter Alex, in support of Lupus Awareness Month.
An Ode to Lupus Oh Lupus, you do suck so bad,...At times you drive my family mad. It’s not that fun when, due to flares, Not Mom nor I can manage stairs; Or when our favorite shoes don’t fit Because our ankles look a bit Like elephants’, so large and blotched To match our knuckles, white and locked; Or when the guys run off to do Athletic things, that we like, too, But can’t because it hurts too much So then sit in, and order lunch. So screw you, Lupus, but until A cure is found (we know it will) We’ll carry on with badass lives With determined, undefeated minds. We’ll have our mother/daughter bonding As matching blood-draw marks are bleeding; We’ll take walks, and stop a while To catch our breath, and then we’ll smile At the silly story one of us told Of a friend, or book, or memory old; We’ll buy enormous, silly hats To keep sensitive skin from burning fast, Then venture out to summer days By our Lupus, yet unfazed.
Both my girls rock! If you're so inclined, please consider the Lupus Foundation for some of your giving dollars ... they lead a great fight against a crappy disease.
Simply impressed - that for someone who suffers from Lupus to muscle the energy and motivation to pen this poem. Let's pray there will be a good remedy soon.