Monday, June 22, 2009 10:30 PM
by
hlthblog
Join the revolution—Your data, your rights
A Declaration of Health Data Rights
In an era when technology allows personal health information to be more easily stored, updated, accessed and exchanged, the following rights should be self-evident and inalienable. We the people:
- Have the right to our own health data
- Have the right to know the source of each health data element
- Have the right to take possession of a complete copy of our individual health data, without delay, at minimal or no cost; if data exist in computable form, they must be made available in that form
- Have the right to share our health data with others as we see fit
These principles express basic human rights as well as essential elements of health care that is participatory, appropriate and in the interests of each patient. No law or policy should abridge these rights.
To learn more, visit http://www.healthdatarights.org/
Bill Crounse, MD Senior Director, Worldwide Health Microsoft
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About hlthblog
Bill Crounse, MD, is Senior Director, Worldwide Health for the Microsoft Corporation. He is responsible for providing worldwide thought leadership, vision, and strategy for Microsoft technologies and solutions in the healthcare provider industry. Prior to joining Microsoft, Dr. Crounse was Vice President, CIO and Chief Medical Information Officer for Overlake Hospital Medical Center and the Overlake Venture Center in Bellevue, Washington. He is also the co-founder of a technology company dedicated to improving information exchange and connectivity between physicians and their patients. Dr. Crounse is known locally and nationally for his work in television broadcasting and medical communications. Prior to joining Overlake Hospital in 1995, Dr. Crounse was a physician and medical executive with Virginia Mason Medical Center and Group Health in Seattle. He is a graduate of the Medical University of Ohio.